Grace Kabelenga had surgery at four years old to correct her facial deformity - but a large section of her skull was removed to prevent infection.

As a result Grace from Ndola, Zambia, has never been to school and is not allowed to play with other children as she is desperately prone to infections.

Just falling over or being touched in the wrong place could have killed her, as the entire front section of her skull was missing and her brain was completely unprotected under the skin of her forehead.

Now Grace has undergone state of the art surgery in South Africa to have a specially constructed forehead implanted into her skull to encourage the bone to grow.

Grace’s unique facial condition developed in the womb and her parents Ngula and Elijah desperately sought medical attention upon her birth. 

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Grace’s face had been forced apart by an encephalocele, a defect in which part of the brain peaks through an opening in the skull, splitting open her face down the middle.

It destroyed the base of the skull meaning there was a hole in the roof of her mouth through which her brain was hanging.